Failsafe 102 (November - December 2021)

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The Food Intolerance Network provides information and support for people worldwide using a low-chemical elimination diet free of additives, low in salicylates, amines and flavour enhancers (FAILSAFE) for health, behaviour and learning problems.

Focus:

Hidden additives

Failsafe changed my life

BBQ sauce

Research:

‘Hygiene hypothesis” under attack

Opioids are in gluten as well as A1 milk

In brief:

FSANZ 2021 Stakeholder Satisfaction Survey

Australian Dietary Guidelines

New blue food colour

India again leads with food regulation

Sue Dengate's famous presentation “Fed Up with Children’s Behaviour” is now available to view for free (1hr 12mins).

Your questions:

Oxalates keep being mentioned as something to avoid for some people. What is the science?

Book review:

The Lunchbox Effect by Belinda Smith

Success stories: [1613] – [1623]

[1624] One-liners (October 2021)

[1623] 'cultured dextrose' in gluten-free breads (October 2021)

[1622] Long-term effects of food intolerance – facebook thread (September 2021)

[1621] Food effects “like out of body experience” – facebook thread (September 2021)

[1620] Eating disorder behaviours – facebook thread (September 2021)

[1619] What was the best thing you got out of reading Fed Up? (September 2021)

[1618] 13 millionth visitor to the Food Intolerance Network (September 2021)

[1617] Celebrate this failsafe win! (August 2021)

[1616] ADHD diet approach – facebook thread (August 2021)

[1615] Amine challenge causes nose bleeds (August 2021)

[1614] Vertigo and salicylates (August 2021)

[1613] “He was a totally different child” (August 2021)

Failsafe shopping list: Food Intolerance Resources from RPAH; SPECIAL OFFER on Friendly Food

Factsheets: over 100 science-based information sheets on symptoms and additives. See also video resources. See also story collections

Support community: Failsafers talking to each other. New and updated dietitians.

Cook's corner: latest At the Failsafe Table #67 - bet you can't look at these recipes without wanting to try them - thanks Rona!

Thanks and admin:

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Failsafe Newsletter 102 headlines an important WARNING about HIDDEN ADDITIVES. Many consumers still don't realise that innocent-sounding names can now be used instead of additive numbers, as this failsafer from New Zealand wrote:

"We are very aware that preservative 282 is the worst of all additives so I'm very grateful for your heads-up...Sure enough, cultured dextrose is listed on the Gluten Free bread that we have been having this week ... and the loaves we normally buy!!!" - Linda from story [1623]

As usual, the reader stories are so interesting. My favourite this time:

 "After 5 weeks strict elimination...he was a totally different child - calm, relaxed, focused, went straight to sleep and slept for nearly 12 hours, easy to reason with, increased self control"- Jacqui [1613]

And there are some fascinating facebook threads:

  • longterm food intolerance - "I suffered for 40 years before I discovered my intolerances, my health seems to have reversed...now no drugs at all" - Kath [1622]
  • nose bleeds due to amines - "My nose bleeds have finally stopped ...My ENT has been trying to work out the cause for years!"- Pam [1615]
  • feedback - "...through my daughter's journey i also learned about my own issues with amines and it has made an incredible difference to my quality of life" - Silv [1618]

Don't forget: Sue Dengate's famous presentation "Fed Up with Children's Behaviour" is now available to view for free (1hr 12mins)

Cooks' corner: Failsafe maple chicken stir fry - and more, from the Failsafe Table

As always, thanks to everyone for support and sharing, and special mention to Rona, Teresa and Tracey for their help with recipes, facebook and story collections.

Now read on - Sue Dengate
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Hidden additives

Consumers want to avoid ADDITIVES, so food manufacturers have switched to adding innocent-sounding INGREDIENTS which contain these same additives, often claiming ‘no added whatever’.

Here is how you can recognise this trickery for the two most important additives that people seek to avoid – propionate bread preservatives and MSG.

The latest scam is to get the additives classified as Processing Aids. These do not appear anywhere on the label. See what is coming in future food products with hidden Processing Aids.

Propionate bread preservative 282


Of the 19 ways in which propionate preservatives can be added to food,
only 8 are regulated and must appear as additives. The rest are hidden.


CLAIM:
the package often says ‘no added preservatives/additives’

INGREDIENTS TO LOOK FOR:

  • ‘cultured’ OR ‘fermented’
  • ‘wheat/wheatflour/flour/whey/dextrose/..
  • OR EVEN ‘starter culture’(in some bread products - don't forget that sourdough bread contains high levels of propionates)

EXAMPLE:

       BLOGhidden03small 

   Monosodium glutamate MSG 621


Of the 129 ways in which glutamate flavour enhancers can be added to food,
only 12 are regulated and must appear as additives. The rest are hidden.


CLAIM:
the package often says ‘no added MSG’ - if the packaging says anywhere ‘no added MSG’ then it is very likely that there IS added MSG in another form.

INGREDIENTS TO LOOK FOR:

If the ingredients label includes any of 129 names in the table in the full blog, there MAY be free glutamates (which is the same as adding MSG).

There is CERTAINLY added MSG in one form or another if these appear:  627, 631, 635, ribonucleotides, nucleotides, disodium guanylate, disodium inosinate, disodium 5'-ribonucleotides.

EXAMPLE:

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Processing Aids

Two enzymes are seeking approval which increase flavour enhancers inside foods without consumers ever knowing as they will be "Processing Aids"!

One will increase flavour enhancer 631 Disodium-5′-inosinate in foods but not appear on the label as they want it to be called a .

The second will convert the amino acid L-glutamine to flavour enhancer MSG L-glutamate to “in the manufacture of glutamic acid-rich yeast extracts...” This will also not appear on the label as they want to call it a Processing Aid.

It is clear that these enzymes are intended to perform a technological function. As consumers, we want to have these Processing Aids in daylight and on the label!

See more details and read full blog

More about the effects of propionates on health, learning and behaviour

More about the effects of these flavour enhancer additives

Failsafe changed my life

A father who is a single parent wrote to Howard recently:

    “The work you and Sue do is truly life changing for so many people,
    and I cannot express my gratitude enough for the changes I can see
    in my 11 year old son”

He is one of hundreds of failsafers who have written to us to say thank you because the diet that we support - the RPAH elimination diet from Sydney’s Royal Prince Alfred Hospital Allergy Unit - has changed their lives, and you can see a collection of life-changing and inspiring stories about children, teenagers and adults in the full blog from Sue Dengate.

BBQ sauce

My 9yo has been struggling with anger issues. I am trying to work out the cause but it seems to be worse after he eats bbq sauce. I can't work out which other foods are triggering him. Could it be the caramel 150 colouring? It is the only common additive I can see between bbq sauce and other foods he has eaten prior to meltdown.

According to the RPA elimination diet and our readers’ experience, caramel colouring 150 is unlikely to cause problems.

The problems with barbecue sauce are the natural food chemicals known to affect children’s behaviour:

    salicylates – in most fruit, some veg, herbs and spices
    amines – in protein foods and some veg
    glutamates – like MSG

The ingredients in Australia’s favourite barbecue sauce and the RPAH food chemical chart ratings show that BBQ sauce – like tomato sauce - is VERY HIGH in salicylates, amines and glutamates.  

See reader reports and more info
                                heading3research

‘Hygiene hypothesis” under attack

The theory that modern society is too clean, leading to defective immune systems in children is being refuted. Being clean and hygienic need not impair childhood immunity but exposure to cleaning products is nominated as a possible trigger for development of allergic responses. https://www.eurekalert.org/news-releases/587037

Opioids are in gluten as well as A1 milk

Keith Woodford of A2 milk fame has recently extended our knowledge of similar opioids found in wheat. The fragment, gliadorphin-7, is being linked much more generally to health conditions spanning the gut, brain and a range of internal organs including arthritic joint inflammation. https://keithwoodford.wordpress.com/2021/08/26/food-derived-opioids-are-a-medical-frontier/#more-2495 and the paper https://www.mdpi.com/1660-4601/18/15/7911                                                                                                                                                                                                                                                                                    heading4inbrief

FSANZ 2021 Stakeholder Satisfaction Survey

The Network responded during the fortnight for comment on whether FSANZ is "responsive". In our view FSANZ responds within their narrow view of their remit under the Act, but fails in responding to more complex and emerging issues. An example is the way FSANZ carefully regulates numbered "white powder" additives while ignoring the same chemicals being added as ingredients by a food industry keen to avoid showing the presence of those same additives on their labels. See past stakeholder dissatisfaction https://fedup.com.au/news/blog/one-third-mistrust-food-labels-in-australia

Australian Dietary Guidelines

The well overdue revision of these guidelines is starting, with a promise of transparency and declared interests to increase trust in the outcomes. NHMRC has identified opportunities for stakeholders, including consumer groups, health professionals, policy makers, educators and industry, to contribute later in the review process. Will our issues be heard at all? https://www.nhmrc.gov.au/about-us/news-centre/expertise-and-transparency-underpin-review-australian-dietary-guidelines

New blue food colour

The US Food and Drug Administration has just approved a “natural blue” additive derived from butterfly pea flower for use in beverages, ice cream and other frozen dairy desserts, confectionery, yoghurt, liquid coffee creamers and chewing gum. Coming soon to a food near you - has it been adequately tested?

India again leads with food regulation

In a 2018 world first, Indian regulators insisted that foods with any ingredient that naturally contains MSG cannot declare “No added MSG” on their packaging as this could mislead consumers. Now India takes a giant step with a  draft standard for vegan products as “those foods or food ingredients that have not made use of any ingredients, additives and processing aids of animal origin including milk and milk products, fish, poultry and meat, egg or egg products, honey or honey bee products, materials of insect origin like silk, dyes, chitin/chitosan etc or ingredients that are clarified using animal sourced products e.g., bone char used in sugar bleaching, isinglass in clarifying beer etc.” In the rest of the world, processing aids are totally hidden and increasingly used.

Sue Dengate's famous presentation “Fed Up with Children’s Behaviour” is now available to view for free (1hr 12mins).

Subtitled version in 6 languages (English, Dutch, French, German, Italian, Spanish) can also be viewed for free.

The Bonus material (interviews with parents) can only be seen in purchased version

DVD3

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Q. Oxalates keep being mentioned as something to avoid for some people. What is the science?

A: Oxalates may be implicated in some pain (particularly vulvar pain and some prostatitis) and keeping dietary oxalate levels below 60mg per day may be helpful. There is a cautious and accurate review of dietary oxalates by Professor Liebmann (University of Wyoming) at https://www.thevpfoundation.org/vpfoxalate.htm. Potatoes, carob, cashews, chocolate (not failsafe as contains amines), buckwheat and some beans that are failsafe might cause problems for those sensitive to oxalates. As with any elimination, do it with a sympathetic and supportive dietitian. More at https://www.thevpfoundation.org/ and https://www.fedup.com.au/information/frequently-asked-questions/diet-questions#oxalate Kidney stones can be caused by oxalates, particularly in diets low in calcium as vegan diets may be – calcium usually binds with oxalates and reduces kidney stone formation.

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102lunchbox

The Lunchbox Effect by Belinda Smith  Teachers and scientists agree that ultra-processed foods are not, as often claimed, "lunch-box friendly" but are actually harming our kids' learning behaviour and health. Belinda usefully focusses on additives, fat and sugar but natural food chemicals in foods, such as salicylates, amines and glutamates, are ignored although they can cause equally great problems for many people. The point-of view is naturopathic, integrative and nutritional, which means that some of the facts presented are not supported by science. Nevertheless there is a wealth of evidence and sound advice for parents. The insight into school practices and waste issues is particularly well informed and useful for schools, canteen managers and teachers. Really compelling is a detailed call for a National Food Policy for Schools which could have a profound effect on on our kids if implemented. More at www.therootcause.com.au where the book can be bought (print and ebook versions). ISBN 978-0-6487624-5-4 2020 - reviewed by Howard Dengate

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You can scroll through the full text of all stories: for every story we report, there are probably another 10 that cover similar issues. And these are just the ones we get to hear about. Names have been changed to protect privacy.

Success story collections: organised by symptom or by additive keywords are proving the most popular downloads from the website. They'll be added to as time permits.

People tell us that stories are so useful and positive!

[1624] One-liners (October 2021)

Thanks for always keeping us safe and safer!! Love the community, how we can all help each other do better. Commend you both for all you have done to start this and keep it going – Diana

My life is definitely better because of you! - anon

Thank you for all the work that you and Sue do. I'm just finishing the additive challenges that we have chosen to do with our 4 year old and hoping to get to liberalisation before starting school next year, and have a 1 year old who is definitely Salicylate intolerant amongst a whole lot more. Without your work, there is no way I would have survived the past 7 months - Amy

I'd like to say THANK YOU for your valuable, relentless and inspiring work in the field of food intolerance! One cannot overestimate the support - both through information and self-empowerment - that you give to people affected by food intolerances and those caring for people who are affected - Sylke Sedelies, dietitian in Berlin, Germany

[1623] 'cultured dextrose' in gluten-free breads (October 2021)

We are from NZ.  I spoke to you at least 20 years ago on the phone regarding our 2 children who were intolerant to almost everything.  Your  support and website information has been a go-to and a life saver for us ever since. Our children have grown out of a lot of their intolerances and over the years I have become less obsessive with ingredient checking.  We live gluten free due to a coeliac being in the family and all of us feeling better without gluten in our diets ...We are very aware that 282 is the worst of all additives, so I'm very grateful for your heads-up...Sure enough, cultured dextrose is listed on Pam's Gluten Free bread that we have been having this week. I have also googled the ingredients for the Vogels GF loaves we normally buy, and it's in those as well!! I am so glad you mentioned it. I've just fed the remainder of Pam's loaf to the ducks …" - Linda

[1622] Long-term effects of food intolerance – facebook thread (September 2021)

Q: When suffering from the symptoms of a food intolerance over a long period of time are there known detrimental effects on any other parts of the body like liver, kidneys or nervous system? – Anne

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I suffered for 40years before I discovered my intolerances, my health seems to have reversed. I’m in excellent health now. I was on prednisone for salicylate induced asthma, drugs for reflux & skin issues. Now no drugs at all. I’m still pretty sensitive, I can’t eat fruit ever, but my pretty dramatic symptoms (throat spasms, loss of vision) clear up pretty fast once I started FS, the challenges where really tough. It changed my life - Kath

I also feel so much better since going on this diet – Sharon

You’ll feel much better and may be able to ditch some drugs that were previously helping you deal with symptoms. But unlike coeliacs who’s gluten intolerance actually causes stomach damage, at this stage there is no evidence to suggest that other food intolerances cause damage to your body – Jody

My liver function wasn’t optimal and I had fatty liver - yet never had alcohol. I was also puffy and looked unwell. My iron level was way too low (7, when meant to be 45-55) and I was permanently exhausted. 6 months after being on failsafe: normal liver function; 15kg lighter; headaches gone; no puffiness; iron now normal – Susan

I’ve had chronic sinus issues my whole life. Was going to have sinus surgery due to CT Scan and severity of symptoms but I changed my diet (no wheat or dairy) and my subsequent CT scan showed much healthier sinuses. I also had positive Anti Nuclear Antibodies (ANA) in my 20s, which disappeared when retested last year (15 years on). The body and brain are so fascinating - Katie

[1621] Food effects “like out of body experience” – facebook thread (September 2021)

Q: Has anyone had trouble with thoughts...like out of body experience? And thoughts not coming in chronological order and just all crashing around? My DS20 is having a terrible time! - Janine

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Salicylates trip for me - Narelle

Yep salicylates make me feel like I’m in a cloud & not really present. Makes me feel like I’m on the outside looking in 😒🙃 – Abbie

I was a complete space cadet on amines, turned up to a massage that had not even been booked, but really thought it had. Put wrong contacts in wrong eyes. Super tired and spaced. I get really cold too, when I eat the wrong thing ... - Peta

I get the same thing! Brain fog, feeling fuzzy or “feeling out of it” I call it. It’s so frustrating but so glad I am finding relief now I am on elimination 🙂. (And also glad that we can all understand what we are going through. It’s tricky explaining to people who don’t experience it) – Pam

Thanks for your comments! I'll pass it along. He said he felt sooooo bad. It was quite scary - Janine

See more in factsheet on withdrawals with antidote for salicylate reactions.

[1620] Eating disorder behaviours – facebook thread (September 2021)

Q: Has anyone found that the elimination diet has triggered eating disorder behaviours that weren’t present before? - Terri

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It can trigger orthorexia in some people, which is sort of like considering all the foods that are bad for you, as being inherently toxic to *everyone* and not just, bad for yourself - Belinda

Unfortunately going on any sort of diet is a risk factor for developing an eating disorder – Sara

I have done the failsafe diet for both my husband and our son (one in, all in) and I am a recovering anorexic (last hospitalisation was over 20 years ago). I found that I had to start seeing my psychologist again when we first started the failsafe diet 3 years ago. Together we came up with strategies to overcome the feeling of restricting food intake etc which was extremely helpful – Kath

Yes. But on a lighter note....any diet that allows me to eat chips and jersey caramels is going to cause issues! - Annie
 
It was partially responsible for triggering OCD for me (but trauma played a big part too) because realizing I react to things like wrong cooking method or food kept a bit too long or contamination from other foods was something my brain grabbed hold of and ran with 😬 - Rene

I am the opposite. I never liked eating as I often felt unwell after eating. Now, I can eat without feeling sick so I actually eat more & enjoy eating - Sharyn

Yes, to the point I made myself really sick from malnutrition. I was already struggling with medicine-related poor appetite before failsafe. Around week 3 it all went downhill as I preferred starving to the idea of eating the stage one food options again. It took months for anyone to realise how little I was eating. It is still very early in the recovery stages where it is a huge achievement if I manage one meal and a snack two days in a row - Becky

Yes, but my dietician was aware that this happened a bit last time I did a gut healing course. We agreed that I had to do all the steps properly and transition off properly and check in often and have a food diary and write honestly so that if I wasn't eating enough or focusing on things too much he would steer me away from that. I have been better than last time but I want to get off this diet because while it's been helpful I know mentally I need to more food options again soon – Megan

Yes, this diet made me utterly bonkers! I was obsessive to the point if throwing food away if it was cooked a minute too long. Would be wonderful if there was a support group for this – Anne


We always recommend a supportive and experienced dietitian to supervise the RPAH protocol, particularly if there are food disorder issues. Elimination and challenge is a diagnostic protocol, not a lifestyle, and it is important to liberalise diet to your limits. Ask for RPAH’s liberalising advice This email address is being protected from spambots. You need JavaScript enabled to view it.

See more in our excellent factsheet with scientific references

[1619] What was the best thing you got out of reading Fed Up? (September 2021)

FUcover3

It was my go-to when I was explaining to school and health care providers what I was doing. It was reassurance when I couldn’t remember the details and also a go-to for troubleshooting - Kristan

The references. It's strengthens your case enormously when dealing with sceptics, or those that thinks it's another form of 'fashionable' diet fad, including hospital admissions folk, teachers, etc – Stephanie

Didn't read the book but use the website. It's really useful for navigating tricky stuff like how to avoid glutamates etc. I was making mistakes and this helped me see where – Sarah

It helped me understand that I wasn’t just a naughty kid as I was treated - Ruth

This book was my bible when my kids were little. I did the failsafe diet 16 years ago, and it was the only reference I had. What have I got out of this book? Boys that went from being the ferals of the school to the politest boys in the school (in three weeks). Boys who I could take places, without fear of a food based tantrum, peace in the household, some of my sanity back. This book re-defined food for us, and has made our life so much better. It gave us the tool to let them be the men they are supposed to be. Now my oldest is 22, and we have been on this way of eating for 16 years and they still check labels. I have two at uni and one aimed there, all doing engineering of one form or another. Thank you for giving my boys back to me - Liz

This book is the only book I source recipes from. Can’t live without it. Thank you both. I recommend it to anyone who suffers allergies - Jean

[1618] 13 millionth visitor to the Food Intolerance Network (September 2021)

In September we recorded our 13 millionth website visitor at www.fedup.com.au. Thanks everyone for being so supportive and positive! Feedback:

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Woah! What an achievement 🙂 . Another sign that you've made it: you have a hater group on Facebook, called 'Sue Dengate Failsafe Group Exposed'. Apparently your dietary advice needs to include much more about the impacts of vaccines and water fluoridation on dietary intolerance! 🤣 Last I saw, it had six members – Tiffany

That is wonderful. What a help it is to so many. Thank you both. I first made contact with Sue nearly 30 years ago – Robyn

Thanks so much for all the straightforward, practical advice over the last 22 years (in my case!), you have truly been life savers - Helen

1 million of them is probably just from me checking stuff over and over 😂. Thank you for helping me SO much! 🙏💕 – Kristy

Thanks for all the advice you have shared over the years – Judy

What an incredible service you have provided families for all these years...through my daughter's journey i also learned about my own issues with amines and it has made an incredible difference to my quality of life, thank you! – Silv

Wow. Thanks for being there for so many years. A great knowledgeable support for so many people - Lorraine

Thanks for being there for so many of us in despair, then to see the way ahead - Helena

[1617] Celebrate this failsafe win! (August 2021)

Whether you believe in God or not please celebrate this failsafe win with me!

My 8 year old son just told me sheepishly he wanted to tell me something god did for him today. His friend gave him 50c so he decided to get an icy at the canteen (full of flavouring and additives and we have been on strict elimination diet for 5 weeks)...then when he went to get it out of the cup the stick broke. So he went to the canteen and they gave him a spoon. Then the spoon broke. He thought in that moment god was telling him not to break the diet so he threw it in the bin. Bless his little heart ❤️- Kylie

[1616] ADHD diet approach – facebook thread (August 2021)

Q: My 12yo son was diagnosed adhd & specific learning disorder 3 yrs ago & medicated. His teachers feel as though he is not progressing at all & he seems to be getting worse. They question his diagnosis, hence they are reassessing. I was hoping to try the elimination diet to see if this would help - am I best to do the 4 weeks elimination or just the ditch foods with additives, being that the main issue is that he is particularly vague, switches off, loses focus? - Bella

Answers from facebook group:

My son was diagnosed with ADHD when he was 6, he’s now 36. He was put on medication that didn’t help. Find something he’s really interested in, my son loved lego, to boost his concentration span, also reading, something that he loves, you will be rewarded, it takes time and a lot of effort from you but worthwhile – Della

Couldn’t agree more avoiding additives (incl synthetic perfumes etc), eating 100% organic is very effective for me as an autistic adult with ADHD. Medication still helps—it’s just not enough if the body is assaulted by inflammatory chemicals - Miff

I was asked to take my son for testing for autism but when he went onto strict elimination he completely changed overnight. His teacher told me she could see no sign of autism (although I know he's still got more subtle sensory needs, fixates on some things like science, how things work, screens, minecraft)...If he has something like broccoli he will run around crazily, sugar gives him a high but then a low where he'd lie down and cry, carrot for example he'd be aggressive or argue, some things he'll be very sensory and touch all the walls etc. Anyways, not a 'cure' as I think it is how he's wired and he's a really beautiful smart child... but it makes his life a lot easier - Micky

Autistic and ADHD person here. An elimination diet can help an environmentally Sensitive Autistic person but that's not the only thing that can help. Autistic people are sometimes capable of something called "Masking" which means suppressing Autistic traits. It's exhausting to do and causes fatigue and burnout. Getting him to stop doing the things that make him ADHD will lead to burnout. I would suggest you test him for Autism anyway and make sure his accommodations are met. There's lots of tools to help with sensory issues; headphones, weighted blankets, chewelry, fidget toys, etc. These will help him regulate his emotions and sift through uncomfortable stimuli - Sam

Any diet will not "cure" your child. Diets will only help your child if they are environmentally sensitive to those chemicals. Even if diet does do something, your child still has Autism or ADHD and finding ways to accommodate their needs instead of suppressing them will lead to an infinitely happier child. Put it this way, if loud noises bother your child you can teach them not to react to the noise, but the noise will be as loud or bothersome as ever. They just won't feel safe enough to show that they're hurting - Sam again

I get so upset when people try to “cure” neurodivergence. I can confirm that whilst I get grievous mood swings from artificial flavours, no amount of bloody vanilla ice cream will get me through Kmart exposure for longer than 30 minutes. The sensory overload is hell. The language used around the discussion of diet and asd/adhd needs to change otherwise people will continue to feel unacceptable members of society – Kate

The thing is, the ND people who don't have these food and chemical sensitivities see the whole thing as a myth. They don't understand the relationship that things making us sick, tired, or in pain can impact our focus or our tolerance for sensory overload – Kate again

My son had behavioural issues at home and in classroom around age 8 and the elimination diet resolved most, it was amazing the difference within 3 weeks. He was found not to have ADHD as there was never an issue of concentration on things he was engaged with. He reacts to salicylate, amines, antioxidant, benzoate and glutamate all with different reactions. Although he has less adverse reaction to salicylate which make him more sensitive, emotional etc. I have always wondered if they contribute to his lack of concentration in class. My son now 14, eats relatively well at home but whatever he chooses away from home has fewer behavioural issues as he has grown but has zero interest in reading/writing school subjects and is behind for his age – Nicky

Everyone is different, so react to different things. So I'd definitely try full elimination. My 5yr old has ADHD, after 4wks we definitely saw improvements in focus and sitting still. Eg. from getting up from dining table 20+ times while having dinner to only getting up 2-5 times; finally sitting at group time and not running around the classroom and touching the child next to him; sat and focused on colouring in a picture for the first time. So hopefully he will be able to sit long enough to actually learn something now. Sals made him return to previous non-focus behaviours – Lena

It is very hard at first, I may have had a bit of a meltdown in the first week of planning menus. And being out and about or birthday parties is hard. My son has delays also, but has noticed himself that his speech has improved (his oppositional behaviour has reduced considerably so that he actually partakes in his speech sessions). He is so proud of himself, so I use that to remind him at parties etc, so he understands why he's on the diet. Plus I give him marshmallows and chips so he doesn't completely miss out – Lena again

It's easier with the assistance of an RPAH trained Dietitian - Samantha

[1615] Amine challenge causes nose bleeds (August 2021)

My nose bleeds have finally stopped 4 days post Amine Challenge 😁👍 My ENT has been trying to work out the cause of sporadic nose bleeds for years! They even happen mid race up mountains but I know why now. I have heard so many crazy reasons for my nose bleeds over the years 😂. Pat yourselves on the back all of you celebrating failsafe wins out there 😁🤗 - Pam

Erin: Me too! Amines also. Unbelievable that I put up with it for so long!

Mary: Happens to me too!

See Amines factsheet

(Howard's comment: amines and other food chemicals can also alter blood pressure, see [1129] for instance)

[1614] Vertigo and salicylates (August 2021)

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Just wanted to report my good news about the elimination diet working to stop vertigo!  It's the salicylates, after trying to include some moderates, (too many at once) the vertigo came back mildly.  Next time I try some moderates I will have half a cup every second day to start with. My 'healthy' only wholefood diet before Failsafe was VERY high in all the natural food chemicals.  So thankful to the Dengates and RPAH for sharing their knowledge about how to relieve food intolerance symptoms – Laura

More in blog on vertigo

[1613] “He was a totally different child” (August 2021)

We started the strict elimination diet 8 weeks ago. After 5 weeks we reached baseline - it was incredible. He was a totally different child - calm, relaxed, focused, went straight to sleep and slept for 11 nearly 12 hours, was easy to reason with, had increased self control etc etc. Then we trialled dairy nearly 3 weeks ago......many of the behaviours returned, his sleep was instantly affected and his skin broke down in cracks and rashes. We are still trying to get back to baseline after the dairy challenge - could be weeks, months before we do. But at least I know dairy is part of the problem. We consult a dietitian regularly - one recommended by Sue Dengate. And I've read everything I can get my hands on. It makes so much sense to me now - Jacqui

Don’t forget, you can search for stories/symptoms or scroll through all current stories 

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**REMINDER*** Many gluten-free breads and breadmixes, such as Lauckes which we recommend, do contain sulphite preservatives 220-228. The potato and tapioca starches common in GF breads are purchased overseas, not manufactured in Australia and always contain sulphites from their method of preparation. Most report that they are not affected as sulphites cook off in baking, but watch out - thanks to Zoe (dietitian) for pointing this out.

Food Intolerance Resources from RPAH at https://www.slhd.nsw.gov.au/rpa/allergy/resources/foodintol/resources.html 

The following resources have been made available on the condition that they are for personal use only and may not be distributed:

  • Elimination Diet shopping guide
  • NSW & ACT butchers
  • Toiletries & Personal care products
  • Medications
  • Nutritional Supplements

NOTE the failsafe shopping lists on www.fedup.com.au is being regularly updated to reflect changes. If using the shopping lists, check for a current date at the bottom of the list.

The failsafe sausages list has been updated again. Please email directly with changes, preferably in the format in the list, This email address is being protected from spambots. You need JavaScript enabled to view it.. People continue to rave about the real flavour of these sausages!

The completely revised and updated Friendly Food from RPAH is now available at $38.00 including post and GST from the Food Intolerance Network store

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SPECIAL OFFER because it costs no more to post these:

  • Friendly Food (at cost) $38.00 incl postage & GST
  • add Fed Up for only $18.00 (32% discount)
  • add Failsafe Cookbook for only $27.00 (22% discount)
  • add Fed Up and Failsafe Cookbook for only $45.00 (25% discount)
  • add DVD Fed Up with Children's Behaviour for only $14.00 (45% discount)
  • add 'The Set' (Fed Up, Failsafe Cookbook & DVD) for only $60.00 (25% discount)

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If you want some inspiration, try the COURAGE AWARD story collection - 40 pages of brilliance!

Most recent FOUR story collections: 160b annatto, 282 propionates, epilepsy and autism – if anyone wants to help update a story collection (all you need is time and some word processing skills) please email This email address is being protected from spambots. You need JavaScript enabled to view it.

Factsheets provide science-based access to information on added and natural chemicals, on symptoms and support. See full list of over 100 factsheets and remember that you can use the search function to search all factsheets (Information>Factsheets>Search all factsheets)

Don't forget that there is great collection of short videos to help answer your questions and understand food intolerance.

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Thanks for your continuing support of each other!

**WARNING** www.food-intolerance-network.com is a spam website funded by the shadowy “Society for Public Health” about which no information is available. We think it is a food industry spam site and complaints about stealing our name have been unanswered. Use www.realfoodintolerancenetwork.com to find us directly.

A video-graphic introduction to food intolerance from one of our Network members (2 mins): Food intolerances, what are they? Thanks to Steph Aromataris www.stepharomataris.com

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Diet not working as well as you'd hoped? One tiny mistake can make a huge difference. For fine-tuning, see the Checklist of common mistakes. Readers tell us this list is very useful. You can also ask for our Salicylate, Amine and Glutamate mistakes sheets This email address is being protected from spambots. You need JavaScript enabled to view it..

Online support: Sue Dengate facebook group (over 17,000 members, open forum meaning the public can see your posts).

Closed failsafe group https://www.facebook.com/groups/352777968116759/ with over 5,000 members (the public cannot see your posts)
USA facebook group https://www.facebook.com/groups/284241571702972/ Note that this group has changed its name to Failsafe USA Products.
NZ facebook group https://www.facebook.com/groups/1011400158967643/ (membership preference given to those living in New Zealand)
UK facebook group https://www.facebook.com/groups/380347182034474/ again accessible

twitter-bird-blue-on-whitetweet as @failsafers (note the plural). See all tweets https://twitter.com/failsafers

The Food Intolerance Network website has had over 13 million visits

Dietitians: Remember that we always recommend that people use one of our supportive and experienced dietitians for best results. Do it once and do it properly and then you will know which food intolerances you have and how to manage them. There is now a list of dietitians able to consult in languages other than English, and overseas.

For failsafe-friendly dietitians, see the regularly updated http://fedup.com.au/information/support/dietitians There is no longer any need to email This email address is being protected from spambots. You need JavaScript enabled to view it. for this list.

Many dietitians are now online and the cost (typically $80 per half hour) can be rebated from most health funds. Ask them when making contact. As one dietitian said,”I use Coviu which is a video conferencing service developed by the CSIRO for Australian allied health workers. It is encrypted end to end so it has a very high privacy. I can show education videos, share documents, patients can fill out forms for me and I can see them in real time so it is going really well”. See also a list of dietitians able to consult in languages other than English, and overseas.

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DVD "Fed Up with Children’s Behaviour” has subtitles in six languages. (In PAL format only, not available with subtitles in NTSC format. But NTSC format DVDs are at a reduced price of only $14.50 including postage through the shop on www.fedup.com.au). As a reward for reading this newsletter so thoroughly, the first person to email This email address is being protected from spambots. You need JavaScript enabled to view it. with their mailing address will receive a copy of our DVD free for each issue (only one person has ever claimed this!)

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Brochures
: are available in many languages
in a printer-friendly format (thanks to Failsafe members for translating!). Email This email address is being protected from spambots. You need JavaScript enabled to view it. if you can help with other languages. Brochure in Chinese. Latest brochure in Finnish.

Newsletters:
All Failsafe Newsletters can be searched and printed. There is a wealth of research, issue discussion, recipes, personal reports and recipes now available in one place. But some of the links are out of date and you must always check current products rather than relying on historical information.

Success story collections: These are the most popular downloads from the website,
organised by symptom and by additive. The latest collection is on violence and aggression (54 pages)
 

The Food Intolerance Network strongly supports the peer-reviewed publication of evidence regarding the effects of salicylates on health, behaviour and learning and acknowledges that more research needs to be published, particularly using dietary salicylates. However the very foundation of science is observation and these observations over many years show an astonishing and convincing range of real symptoms. We hope that they may assist in stimulating further research publication.

Reintroduction guidelines: for people who are extra sensitive, the new RPAH reintroduction guidelines recommend much smaller servings of salicylate and amine containing foods than previously, see reader comment below. Available on request from
This email address is being protected from spambots. You need JavaScript enabled to view it.

Thank you so much for the new RPAH reintroduction recommendations. I now understand why when I tried to ascertain my tolerance levels and did as my dietician recommended (try 1/2 a cup of salicylates) that my symptoms returned very quickly. ½ a cup is 100 times ¼ of a teaspoon, and given my scent problems I’m probably highly sensitive. Now I can try again. - failsafer, NZ

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You can always find more recipe ideas at https://www.fedup.com.au/recipes or Failsafe Cookbook

Every failsafer should get the regular newsletter from The Failsafe Table - it is fantastic October-November #67 has some lovely recipes. Send them your festive recipes in time for the Christmas edition!

FAILSAFE MAPLE CHICKEN STIR FRY

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STICKY RICE SYRUP AND GARLIC SAUCE
LAMB GOZLEME
CREAMY GARLIC CHICKEN RISOTTO
CASHEW & CHOKO CHICKEN BAKE
3 INGREDIENT CABBAGE PASTA
BRAISED SWEDE & LEEK
CREAMY CHICKEN & LEEK PARCELS
SQUID & POTATO STACK
SHEET PAN EGGS & BRUSSELS SPROUTS
LEMONADE PANCAKES
MAGIC MAPLE CUSTARD PIE
CANNOIL WITH VANILLA CUSTARD

You can find more great recipes at Domestic Diva Unleashed, Cooking for Oscar, Failsafe Foodie, Real Meals and Failsafe Decorated Cakes. 

Failsafetable

There's a recipe index of ANY Failsafe recipes on ANY blog. So far there are more than 1,000 recipes with great photos and ideas all categorised to make it easy to search  http://pinterest.com/failsafetable/ 

Failsafe Thermomix group with recipes and a place to ask questions etc https://www.facebook.com/groups/139914166142279/

I bought a Thermomix a couple of months ago, and absolutely love it. These machines are totally awesome, so pure and clean, and I truly believe that if we’d had a Thermomix years ago when our son was at his worst, it would have saved us a lot of heartache, as well as time and money - Susan.

And the very useful weekly meal plan website https://mealsplans.wordpress.com/

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Privacy statement about emails and reports: Your email addresses and stories are never shared with anyone without your express permission. Names in stories are often changed to better protect the privacy of those providing them but the original emails are held in a secure location to provide evidence that these are real reports and that express permission to share them has been granted.

The FAILSAFE Newsletter is available free by email. You can subscribe or unsubscribe here https://www.fedup.com.au/join-failsafe-newsletter-subscriber-list-3

Sue Dengate’s books and DVD, failsafe magnifying card  sulphite test strips and ionizing air purifiers are available through the shop on www.fedup.com.au

Special offer for USA and Canada: Random House has taken over distribution of Sue's books in the USA and Canada, but our current warehouse in upstate New York continues to offer special prices until all gone: Go to http://www.bookch.com and search for "Sue Dengate" - some of them have been there for a while and are a bit brown!

18 copies Fed Up Revised and updated at $US12.50
5 copies Failsafe Cookbook Updated at $US22.00
7 copies Fed Up With Children' Behaviour (NTSC format) - DVD at $US14.50

Fed Up and the Failsafe Cookbook are now available as an ebook: www.amazon.com for Kindle, www.dymocks.com.au in ePub version suitable for Tablet PCs, PCs, Macs, Laptops, www.ebooks.com in ePub for digital and iPhone/iPad.

Sue Dengate’s personal story as an ebook only $3.99: Fed Up with Food Intolerance - a personal story 

"Of all your books, your ebook Fed Up with Food Intolerance is my favourite ­ I just couldn’t put it down" - from Fed Up Roadshow 2015

Look inside

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This is the story that helped thousands of parents and adults understand this baffling disorder.

Buy direct at https://store16061019.ecwid.com/
Download a sample for Kindle (.mobi) or for other ereaders (.epub).
Also available through Amazon for Kindle

Disclaimer: the information given is not intended as medical advice. Always consult with your doctor for possible underlying illness. Before beginning dietary investigation, consult a dietician with an interest in food intolerance. Information is drawn from the scientific literature, web research, group members and personal enquiry; while all care is taken, information is not warranted as accurate and the Food Intolerance Network and Sue Dengate cannot be held liable for any errors or omissions.

© Sue Dengate 2021 (text) PO Box 718 WOOLGOOLGA NSW 2456, Australia but material can be reproduced with acknowledgement. Thanks to the many members who have written, phoned and contributed to this newsletter and particularly to Rona, Teresa and Tracy for their help with recipes, facebook and story collections. Further reading and viewing: Fed Up and The Failsafe Cookbook by Sue Dengate (Random House Australia), Fed Up with Children’s Behaviour (DVD) by Sue Dengate

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